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Finding Life after losing one
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- Posted in BOOK joy, DMD, Duchenne Muscular Dystrophy, Jackson
Finding Life After Losing One was written by Nikki King & Alice Rampton.
Nikki was my college roommate and is one of my very dearest friends.
Nikki contacted me a while back and asked me if I would be willing to write about some of my experiences with Jackson and having the knowledge that my child has a terminal disease and knowing that at some point that disease will take his life.
I was so honored to be able to contribute to her book. We’ve shared with each other the difficulties that each of our situations hold and while we never know what we can handle until we’re faced with it, we both have expressed our thoughts and feelings about how each of us doesn’t think we could handle each others situations.
In this book she shares her experience with losing her daughter, Taylor, in a tragic accident. Throughout this book there are excerpts from other parents who have lost a child.
I want to begin by sharing Nikki’s Story………….
One fateful day, July 27th, 2012, Nikki’s sixteen-month-old, Taylor, had a tragic accident. Family from all over the Pacific Northwest came together for a reunion. That night Nikki and her husband, Eric, were going dancing with some of their family. When the time to get all the kiddos ready to go to the babysitter’s. Unbeknownst to Nikki, Taylor had slipped outside through the front door. Eric went to move the car in preparation for leaving. Not knowing that Taylor was outside, he moved the car and Taylor was hit by the right front tire. He never saw her little body. Panic ensued. Eric rushed her to the emergency room. Nikki was in the kitchen and saw Natalie (her 5 year old daughter) rush in like she had seen a ghost. She happened to be playing with the dogs outside and saw Taylor under the car. A short while later I got a phone call to go to the hospital, so I left the other 3 children with family. Upon entering the hospital all she could hear was her husband repeatedly saying, “I’m sorry. I’m sorry. Please don’t blame me”. The doctor said Taylor had died on impact.
Eric and I have stuck to the promises we made to each other that day. What we still struggle with today is the blame we place on ourselves. That’s not helpful either. The reality is that our personal situation would only get worse if we lost each other as a result of this tragedy. Taylor was born because of our love, and together we strive to heal from this tragedy through our love.
Nikki later recalled that the whole week she would get an overwhelming feeling to look over her, smell her, kiss her, and hold her close. Do I think that was by accident? or was that divine? It was absolutely divine. When we get those nudges or ideas….we need to listen to them. I am so proud of Nikki for taking that time to listen and to have those last few snuggles, smells and kisses.
Death takes many forms: overdose, suicide, accident, disease, murder, and the unknown. We don’t pretend to understand the emotions or experiences of all parents who have lost a child.
The other author, Alice, has a story about what happened with her daughter Lora. You can read about that here:
There was a large mass on her left adrenal gland. It turned out to be a neuroblastoma. They had opened her abdomen up and found that the tumor was too large to remove. It appeared to originate in the adrenal gland and had begun to invade her other organs. She was given a 5-10 % chance of survival. They did a surgery to remove what they could and then the tumor came back.
Still cradling her in my arms on the changer, Lora simply reached up toward something and took her last breath. Mark came beside me, and we cried as we realized that she was gone.
There are so many wonderful pieces of advice in this book and I have written down the ones I love below. Here is one excerpt from the book that I wrote about Jackson.
“Although you stand at my grave and weep, I am not here, I do not sleep. I walk on heaven’s golden streets and listen at my Savior’s feet. ” -Susan Fisher, mother of Dallas Fisher (1988-1992)
“Grief is the price we pay for love” – Prince William, Duke of Cambridge
“And once the storm is over you won’t remember how you made it through, how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. But one thing is certain. When you come out of the storm you won’t be the same person who walked in. That’s what the storm is all about.“
-Haruki Murakami
In this excerpt from the book I am discussing how I handled receiving the diagnosis.
A child who loses his or her parents is called an orphan.
A woman who loses her husband is called a widow.
A man who loses his wife is called a widower.
There is no word in the English language for a parent who loses a child
– it’s just unnatural.
“I’m convinced that the Lord may push us to the very brink of despair to test who our God really is. He tests us to see who we turn to in our hour of need. He blesses our lives, and then we can turn and express gratitude for those blessings. I don’t think I’ve ever been grateful for my trials, but I’m grateful for what I learn from them. I’m grateful for the tender mercies that I see because of my trials.” – Nikki King
As the world you know crashes down around you and chaos becomes the norm, the one thing you have control over is your attitude. You basically have two choices: 1) You can choose to be bitter and angry 2) You can choose to learn from and accept your new reality.
“We aren’t always responsible for the circumstances in which we find ourselves. However, we are responsible for the way we respond to them.”
“Those we love don’t go away, they walk beside us everyday, unseen, unheard but always near, still loved, still missed and very dear.”
“A good friend is….a safety bar on your emotional roller coaster, a therapist without the high hourly fee, a nonprescription mood enhancer. “
To purchase the book you can get it HERE on AMAZON.
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