Recent Posts
17
RallyCap
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- Posted in DMD, Duchenne Muscular Dystrophy, Jackson, LIFE joy
I’m always on the lookout for sporting programs that Jackson can take part in, but up until recently I haven’t been able to find all that many.
I’m the type of mother that never wants their child to feel left out or that they can’t do something.
I modify things for Jackson all the time so that he doesn’t feel left out, but with sports there really is no modification. It’s adrenaline, impact, running, and competition. All things that are not good for a boy with delicate muscles.
That recently all changed when I heard about a program called RALLY CAP SPORTS.
It is a sports program for children and young adults with special needs. They want to create a world where people of all abilities can share in the joy of sports.
Their mission is to create positive sports environments fostering social integration, healthy living, and greater self-confidence for children and young adults with specials needs.
Each local league has passionate volunteers of students at universities. So the mission is actually two fold;
to provide transformative sports opportunities for the under-served special needs community and bring together communities by changing attitudes and opening hearts.
Here’s a short video showing Jackson at Rally Cap! {specifically at 2:09 for those impatient folks)
“Sports are a powerful avenue for people with special needs to discover new abilities, develop confidence, and find joy in every day. They also uncover a sense of belonging and inspire communities to open their hearts to people of all abilities.” -Rallycap
Jackson has had the opportunity to participate in two of the sessions so far.
The first one he did was Basketball.
This was his first time being part of a program/team with this sport and he was thrilled.
He was so worried at first because he didn’t know how it would go and he had many questions.
“How can I keep up?”
“What if I get tired and need a rest?”
“I’m not going to be good enough.”
I explained to him how this was a special program that is different from the rest and that it would not allow him to overexert himself.
That if he was tired, he could easily take a break and come see me for a drink.
That he was in control of what he wanted to do and that if ANYTHING was too much, that he could stop anytime.
We went and he met the girls he would be playing with and pretty quickly a big smile appeared on his face.
They had hoops of all varying sizes and he could shoot at any which one he liked.
The pure joy on his face from making a hoop was enough to make my momma heart soar.
This program is seriously managed SO well and I couldn’t have been happier as a parent watching on the sidelines.
Afterward we had to celebrate by getting some ice cream of course!
Jackson knew right where he wanted to go and this time he ordered up a big sundae!
At basketball each week he would just light up and have such a blast.
At the end of the session he was honored and celebrated for being such a wonderful player and given a trophy.
As you can tell…..that MAY have been his favorite part!
Jackson also just did the Football/Cheerleading Session and yet again it did not disappoint.
He was way more apprehensive this time about doing this sport.
He’s never played football and knew that it was an impact sport.
When he first got there he refused to take part, I think it was a combination of fear + the fact that he just woke up from a nap.
But after I got out there and played a little football and then after he giggled at me and how terrible I was he gave it a shot!
We then found some hula hoops and that really made him giggle when we all tried to do various tricks with them.
and then near the end I couldn’t spot him and wasn’t sure where he moved to.
and then i saw it.
He asked his girl if he could do the cheerleading portion.
and all i needed to see were these 2 pictures to know that he was definitely enjoying himself.
PURE JOY.
If you would like more information about the RallyCap Sports program you can visit their website HERE.
“Children and young adults with special needs should be able to participate in and enjoy sports just like everyone else!”
-Paul Hooker, Founder
26
You are a badass
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- Posted in BOOK joy
You are a badass: how to stop doubting your greatness and start living an awesome life
By Jen Sincero
This book is seriously SO fantastic. It has some of the best messages I have ever read.
There is some gold in this book and I have written down some of the very best ones for you to take a sneak peek into before you get the book and dive in yourself!
It’s about having the cojones to show up as the brightest, happiest, badassiest version of yourself, whatever that looks like to you.
“The good news is that in order to do this, all you need to do is make one simple shift:
You need to go from WANTING to change your life to DECIDING to change your life.”
Someday you should wake up crying tears of giddy disbelief that you get to be you.
“You are a badass. You were one when you came screaming onto this planet and you are one now. The Universe wouldn’t have bothered with you otherwise. You can’t screw up so majorly that you badassery disappears. IT IS WHO YOU ARE. It’s who you always will be. It’s not up for negotiation.”
“When we’re born, we have an instinctual understanding of some of the most important basics of life that includes, and goes way beyond, bending at our knees, instead of our lower backs, to pick a beer can up off the floor. We’re born knowing how to trust our instincts, how to breathe deeply, how to eat only when we’re hungry, how to not care about what anyone thinks of our singing voices, dance moves, or hairdos, we know how to play, create, and love without holding back. Then, as we grow and learn from the people around us, we replace many of these primal understandings with negative false beliefs, fear, shame, and self-doubt. Then we wind up in emotional and physical pain. Then we either numb our pain with drugs, sex, booze, TV, Cheetos, etc. Or we settle for mediocrity. OR we rise to the occasion, remember how truly mighty we are, and set out to relearn everything we knew at the beginning all over again.”
Appreciate how special you are. There will never be anyone exactly like you. You were given special gifts and talents to share with the world, and even though everybody has special gifts and talents, nobody will use theirs quite the same way you do. You have a way of being in the world and a perspective that’s unique to you. You are the only one who thinks your thoughts the way you think them. You have created your own unique reality and are living your life according to your own unique path. You are the only you that will ever be. You are kind of a big deal.
You are more than enough. Avoid comparison like the plague.
DO NOT WASTE YOUR PRECIOUS TIME GIVING ONE SINGLE CRAP ABOUT WHAT ANYBODY ELSE THINKS OF YOU.
“The power of giving is so strong that the excitement and the good feelings are often greater for the giver than for the receiver. When you find your calling and you design your life is such a way that you can share your gifts with the world on a consistent basis, you feel like a rock star.”
“Every single person is born with unique and valuable gifts to share with the world. Once we figure out what ours are, and decide to live our lives putting them to use, that’s when, and only when, the real party begins. Living a life on purpose is available to everyone.”
“Everyone’s journey is unique, but we’re all trying to get to the same place- the place where we feel happiest, the most alive, and the most like ourselves.”
“Much of the time we pretend we aren’t clear on what our calling is when what’s really going on is that we’re horrified to face it because it seems too big or too impossible to make a living at or completely out of the question for us. But what if you had the audacity to leave your excuses and your shame about wanting to be huge and fabulous behind and really went for it full-on anyway? What if you decided to do the most outrageous, most exciting thing you ever dared fantasize about, regardless of what anyone, including your terrified self, thought? THAT WOULD BE LIVING.”
“Many people trade in living fully in their purpose for more “grown up” versions of life that range from the merely passable to the full-on sucking. They’ve bought into this idea that
being responsible = not having fun anymore,
that waking up feeling excited about life is for the young, and once we’re older, we need to trade that in, settle down and be more “realistic”.
YAWN.
I am talking about continuously living our dreams, no matter what stage of life we’re in, instead of settling for mediocrity because we don’t believe anything else is available or appropriate.”
“When you’re so lost in what you’re doing that you lose all sense of time, you have officially entered the Vortex.”
“Giving is one of our greatest joys. It’s also one of the most fearless and powerful gestures there is. When we trust that we live in an abundant universe and allow ourselves to give freely, we raise our frequency, strengthen our faith, and feel awesome, thereby putting ourselves in flow and the position to receive abundant amounts in return.”
“We live in a universe of give and receive, breathe and exhale, live and die, suck and awesome.
Faith is your best buddy when you’re scared shitless.
When it comes to our emotional pain, however, we’re apparently way more game for seeing just how much torture we can endure, wallowing in our guilt, shame, resentment, and self-loathing.
When someone does something awful to you, take that person out of the equation so you can open yourself up to have a more pleasant, and productive, reaction (and life). It’s not about them anyway, it’s about you.”
“You’re the author of your own life- not your parents, not society, not your partner, not your friends, not the bullies who called you Fatzilla in junior high- and the sooner you decide to write yourself a better script, the sooner you get to live a more awesome life.”
“Fear will simply give you an unlived life of mediocrity, wimpiness, and shame.
Other people are like mirrors for us: If somebody bugs you, you’re projecting onto them something that you don’t like about yourself, and if you think they’re awesome, they’re reflecting back something that you see in yourself that you like.
You people you surround yourself with are excellent mirrors for who you are and how much, or how little, you love yourself.”
OWN YOUR UGLY.
As Winston Churchill so aptly explained, “Success consists of going from failure to failure without loss of enthusiasm.”
“If you want something badly enough and decide that you will get it, you will.
There are plenty of people out there in the world living the kind of life you only dream about living, many of whom are far less fabulous and talented than you are.”
23
Big Magic
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- Posted in BOOK joy
I just finished reading the book “Big Magic” by Elizabeth Gilbert.
It was a great, quick read that had some really powerful statements about setting the fear aside and just going for what you want.
I believe every single person has a gift to share with the world and Elizabeth discusses how we must be able to set aside the FEAR and create what is within us.
I first read “Eat, Pray, Love” from Elizabeth Gilbert and truth be told, I didn’t love it.
I’m more obsessed with the Brene Brown & Glennon Doyle Melton authors, but I thought I would give this book a shot. It was getting great reviews and lots of buzz.
I am glad I picked it up, because it had some great advice…..
“You will never be able to create anything interesting out of your life if you don’t believe that you’re entitled to at least try.”
“Believing that you are allowed to be here, and that- merely by being here- you are allowed to have a voice and a vision of your own.”
and my very favorite quote from the WHOLE BOOK:
Go be whomever you want to be, then.
Do whatever you want to do.
Pursue whatever fascinates you and brings you to life.
Create whatever you want to create- and let it be stupendously imperfect, because it’s exceedingly likely that nobody will even notice.
And that’s awesome.
I also REALLY liked her Court Lobster Story…..if you’ve read the book, you will know what I’m talking about.
It’s basically a story where a guy gets invited to a very fancy costume party, so he spends time and money making an elaborate lobster costume, only to get to the party and realize it was a themed party and his costume completely didn’t fit in.
Instead of being embarrased and “red faced” (haha.. .sorry, I had to!) he decides to tell people he’s the Court Lobster and then has a roaring good time making friends and talking with people.