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Stretches for Duchenne Muscular Dystrophy
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- Posted in DMD, Duchenne Muscular Dystrophy
I had the pleasure of meeting Jennifer Wallace at a Parent Project Muscular Dystrophy Connect Conference last year.
She is a physical therapist and owner of the Duchenne Therapy Network.
In June of 2014, Cure Duchenne announced that they would be partnering up with her and traveling around the country to provide training to other physical therapists and parents.
Jennifer will be coming out to speak with Jackson’s physical therapists in the next month, and we are SO excited to learn from her!
She has a YouTube Channel where she shares videos every few months and I wanted to post some of those here today.
They are so beneficial and I always learn so much from each one.
The first one is THE BASICS of STRETCHING in DUCHENNE MUSCULAR DYSTROPHY.
Video 1
She covers about 6 or 7 of the most important stretches to keep our boys’ muscles flexible and able to keep them walking.
Here is a PDF that you can print out with all the stretches on it:
VIDEO 2
This video focuses on Ankle Mobility.
Jennifer shows AFO’s (Ankle Foot Orthotics), which are what Jackson wears at night.
He recently outgrew his first pair, so he has moved on to another type of AFO Night Splint.
She also discusses serial casting.
Video 3
This video talks all about the importance of swimming.
Here is a printable sheet that goes over the best pool activities for our Duchenne boys’.
Video 4
and the last video deals with Mobility Scooters.
When one is needed and how easy they are to fold down into the back of a small suv.
That is the first series of video, stay tuned and I will share the next 4 videos.
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In 2012 my oldest son, Jackson, was diagnosed with Duchenne Muscular Dystrophy. At that time I had never heard of it and so began this journey. I realized that because of the extent of the diagnosis, I don't have much time with my dear son. I took a year to process, grieve, get upset, test my faith, and then to make the decision of how I would let this affect me. The result is this website, Joy in Jackson's Journey, because I realized that instead of falling down with the pain and heartbreak of my situation, I'm choosing to rise up and face it head on, to fight for my son and to show how I not only survive through this new normal, but thrive.
Our Story
It all began back in January of 2012, Jackson was 3 years old and had a diagnosis of Autism (which I’ll share about later), and I took him to see a Biomedical doctor to try the gluten free/casein free diet and supplements to see if if would help him out. After meeting with the doctor she ordered a routine bloodtest to make sure that there wasn't any underlying disorders before beginning supplements.
A few days after getting Jackson’s bloodwork done, I got a phone call from the Doctor. It is a day I will NEVER forget. First of all, because I knew she was away on a family vacation and she was calling me and #2) because she then said, ”I received Jackson’s labs and I need to discuss something with you”.
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