This is Carson McIntyre.

He is an almost 13 year old boy with Duchenne.

I had the pleasure of meeting his mom Kori at the last PPMD conference.

She is phenomenal, a complete powerhouse warrior DMD mom, and last year she wrote this and I have wanting to share it.

Also, Carson is having an upcoming birthday and is requesting birthday cards! Check out the bottom of the post for his address.

Happy Birthday Carson!

Just getting home from a long day at Shriners.

For the most part Carson is doing well, his spine is straight, he has amazing strength, however, we had to set up an appointment to get fitted for both a manual chair and an electric chair.

The stages of this damn disease is taking its toll on my precious boy.

To see the fear in his face and the river of tears coming from his eyes is heart breaking.

He doesn’t want a wheelchair he says.

For now we will continue with a manual chair that is fit to him.

He really needs it to help with his posture while sitting.

The muscles in his back are weak and because of that he has a lot of pressure on his lungs.

This explains why he has a hard time breathing.

Dr. Kerr said that we show our strength through tears and she is amazed at our strength together as a family.

We all cried!

Carson is doing very for his age, but there is a noticeable decline in his ability. He won’t give up!

He is the most amazing human being I have ever met!

Trying to explain to a 12 year old that these wheelchair’s will give him great independence is very difficult.

I just want him to be comfortable at all times. As a mother it is harder than hell to watch your baby struggle especially with the little things we all take for granted.

Please keep praying for my angel! Thank you for all your love and support.

We don’t know what we would do if you all weren’t a part of this battle. Together we can cure DMD!

We will give Carson a chance to live a long life.

He deserves nothing less.

Carson is having a birthday and Kori has requested for anyone to send him cards!

It would really brighten his day!