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Things learned from renting a scooter
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- Posted in Duchenne Muscular Dystrophy, Jackson
Recently a dear friend shared with me her experience after renting a scooter at a museum for a tour with Jackson. I found what she said to be extremely on point and agreed with everything she said.
THINGS I LEARNED WHEN I RENTED A SCOOTER:
1) Always looking up at people is exasperating
2) Signs in front of museum artifacts are not easily read from scooter height
3) Most people were kind and moved out of my way
4) It’s frustrating to not get the full experience because some areas required stairs to access
5) The access elevators are claustrophobically small
6) Some people stare…….. rudely.
7) All thresholds are not created equal
8) I was blessed because I could get out of my scooter whenever I wanted
9) Batteries can die
10) Reverse is scary
11) Stairways next to ramps are frightening. What if I didn’t see them and accidentally drove my scooter onto them…. in reverse!!???
12) I loved sharing the experience with Jackson. It helps me understand him better.
13) You have the most adventurous son who does not let his inability to walk limit him
LASTLY-
14) It should be a required course taught in every middle school- Scooter 101. Followed by a required high school course, Scooter 201.
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In 2012 my oldest son, Jackson, was diagnosed with Duchenne Muscular Dystrophy. At that time I had never heard of it and so began this journey. I realized that because of the extent of the diagnosis, I don't have much time with my dear son. I took a year to process, grieve, get upset, test my faith, and then to make the decision of how I would let this affect me. The result is this website, Joy in Jackson's Journey, because I realized that instead of falling down with the pain and heartbreak of my situation, I'm choosing to rise up and face it head on, to fight for my son and to show how I not only survive through this new normal, but thrive.
Our Story
It all began back in January of 2012, Jackson was 3 years old and had a diagnosis of Autism (which I’ll share about later), and I took him to see a Biomedical doctor to try the gluten free/casein free diet and supplements to see if if would help him out. After meeting with the doctor she ordered a routine bloodtest to make sure that there wasn't any underlying disorders before beginning supplements.
A few days after getting Jackson’s bloodwork done, I got a phone call from the Doctor. It is a day I will NEVER forget. First of all, because I knew she was away on a family vacation and she was calling me and #2) because she then said, ”I received Jackson’s labs and I need to discuss something with you”.
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